discussion session
   
   
  Day 1: Tuesday 16 November 2010
5.45pm - 6.45pm
   
   
  Session 1 - Overview
 

The history of public involvement in research in the UK: A participatory oral history workshop
David Evans, Reader in Applied Health Policy Research, University of the West of England
   
   
  Session 2 - Use of knowledge
 

Hearing voices, telling stories
Kate Sainsbury, Writer
Kay Pattison, Part-time Researcher
   
   
  Session 3 - User led
 

Changing our worlds: Films about user-controlled research
Alison Faulkner, Independent Service User Researcher

   
   
  Session 4 - Networking and discussion
  Making links session
Mark Petticrew, Director of Public Health Evaluations, London School of Hygiene and Tropical Medicine
   
   
  Session 5 - Impact
  Understanding Folk.us
Rachel Purtell, Director, Folk.us
   
   
  Session 6 - Inclusion
 

Presentations (including DVDs) and discussion
Coffee mornings and afternoon teas: Sharing experiences of Telehealth from a patient perspective
Taiwo Adeogun, WSD-User Involvement Manager/Research, Age Concern Newham (Age UK)
Sue Bryant, Senior Sister/Deputy Manager for WSD, NHS Newham PCT
   
   
  Session 7 - International perspectives
 

Presentations and discussion
Examples of public involvement in research from Japan, North Korea and USA as well as from other countries outside the UK
David Ardron, Chair, NIHR National Cancer Research Network Consumer Liaison Group
Judy Birch (chair), Chief Executive, Pelvic Pain Support Network
Kim Wever, Project Officer, Dutch Genetic Alliance VSOP, the Netherlands
   
   
  Session 8 - Innovation
 

Paper and discussion
Employing photography to capture the needs of often neglected populations
Claire Balmer, Research Fellow Warwick Medical School