papers and workshops 3
   
   
  Day 2: Wednesday 17 November 2010
9.30am - 11.00am
   
   
  Session 3a - Impact
Presentations and Chaired Discussion
 

Impact of public involvement on assistive technology design: Experiences and formative evaluation findings
Tracey Williamson, Research Fellow Public Engagement/User Involvement in Research, University of Salford

The impact of PPI on clinical trial design and operations: Can we demonstrate value for money?
Sue Pavitt, Divisional Director, Clinical Trials Research Unit, University of Leeds

A volunteer's reflections on participating in clinical research trials
Anthony Locke, Patient Advisor, University Hospitals of Leicester NHS Trust

   
   
  Session 3b - Hubs
Presentations and Chaired Discussion
 

Successfully developing and implementing an effective regional patient and public involvement in research strategy
Ade Adebajo, Consultant Physician in Rheumatology, South Yorkshire PPI Strategy group

Establishing the North West England People in Research Forum
David Britt, Vice Chair, North West People in Research Forum Advisory Group
Stuart Eglin, Chair, North West People in Research Forum Advisory Group
Gwyneth Raymond, Member, North West People in Research Forum Advisory Group

Improving collaborative support for public involvement in research: Results of a scoping study in the South West of England
Rosemary Davies, Co-Chair, Service User and Carer Involvement in Research Scheme, University of the West of England
David Evans, Reader in Applied Health Policy Research, University of the West of England

Can training promote a culture of involvement within a research organisation or department?
Anne McKenzie, Consumer Advocate, University of Western Australia

   
   
  Session 3c - Practice
Presentations and Chaired Discussion
 

Involving lay people in setting the research agenda
Andrew Gibson, Research Fellow, Peninsula Collaboration for Leadership in Applied Health Research and Care

The first all Wales service user and carer led research group: Developing a model of best practice
Helen Rees, Service User, Voluntary Sector Project Worker, Interlink
Christine Wilson, Research Fellow - Health Professional Education, University of Glamorgan
Linda Evans, Head of Department, University of Glamorgan

SUGAR: Sweetening service user and carer involvement in mental health research
Alan Simpson, Professor of Collaborative Mental Health, City University London

   
   
  Session 3d - Policy/Service Change
Presentations and Chaired Discussion
 

How can user involvement in mental health research influence health and social care policy?
Diana Rose, Co-director, Service User Research Enterprise (SURE), Institute of Psychiatry, King's College London

Are guidelines following the guidelines?
Judy Birch, Chief Executive, Pelvic Pain Support Network
Lynne van Poelgeest-Pomfret, Vice-President, World Federation of Incontinent Patients

Moving beyond involvement: Describing an emerging process of 'research co-production' in a study of support for self care provided by Mental Health NHS Trusts
Steve Gillard, Senior Lecturer in Social and Community Mental Health, St George's, University of London

   
   
  Session 3e - Innovation
Two separate 40 minute presentations
 

A Day at the Races: The story of the LIMBIC project (DVD)
Steve Williams, Patient Representative, Bournemouth University

Second presentation to be confirmed

   
   
  Session 3f - Inclusion
Workshop
 

Young researchers: Our voices, our lives
Louca-Mai Brady, Senior Research Officer, NCB Research Centre

   
   
  Session 3g - Partnerships
Workshop
  From study to strategy: A co-ordinated approach to patient and public involvement in cancer research
Sheila Fisher, Associate Director for Patient and Public Involvement, NIHR-NCRN and NCRI
David Ardron, Chair, National Cancer Research Institute Consumer Liaison Group
Karen Inns, Patient and Public Involvement Lead, NIHR National Cancer Research Network Coordinating Centre
Maureen Twiddy, PPI Advisor, NIHR Research Design Service
   
   
  Session 3h - User Led
Workshop
  Changing our worlds: Examples of user controlled research in action
Alison Faulkner, Independent Service User Researcher
Verity Joyce, Consultant, Communicate and Empower
Lyn Mynott, Chair/Chief Executive, Thyroid UK
Darren Sharpe, PhD Postdoctoral Research Fellow, Anglia Ruskin University Childhood and Youth Research Institute with young researchers Daniel Crawford and Anthony Read