papers and workshops 4
   
   
  Day 2: Wednesday 17 November 2010
11.30am - 12.30pm
   
   
  Session 4a - Partnerships
Papers
 

User involvement in the development of a Kidney Research and Education Initiative
Nicola Thomas, Senior Lecturer in Kidney Care, City University London
Fiona Loud, Chair, Kidney Alliance

Learning from experience: User involvement in kidney care research
Neerja Jain, Project Coordinator (QI-CKD) and ABLE Development Manager, Kidney Research UK
Fiona Loud, Chair, Kidney Alliance

   
   
  Session 4b - Hubs
Papers
 

Leicester, Northampton and Rutland Research Engaging with Patients (LNR REP Forum)
Raksha Pandya, Coordinator, LNR Research Engagement of Patient Forum
Emma Richardson, Research and Development Worker, Carers Federation Ltd

Developing a code of ethics for patient and public involvement (PPI) in research design
Raksha Pandya, Regional Lead for Patient and Public Involvement in Research Design, RDS for the East Midlands

   
   
  Session 4c - Overview
Papers
 

Service user and carer involvement in mental health service development: How involved is 'involved'?
Nellie El Enany, PhD Student, University of Nottingham

The impact of patient and public involvement (PPI) on NHS healthcare services: A review of the literature
Carole Mockford, Senior Research Fellow, University of Warwick

   
   
  Session 4d - User Experiences
Papers
 

Working together to explore acceptable and unacceptable aspects of psychological interventions
Rosemary Barber, Honorary Senior Research Fellow, University of Sheffield
Lyn Russell, Service User Advisor

Eager to be involved
Simon Hughes, Consultant Occupational Therapist, Tees, Esk and Wear Valleys NHS Foundation Trust

   
   
  Session 4e - Research Design
Papers
 

How do members of the public have an impact on the design of health research? A review of seven key examples
Jonathan Boote, Research Fellow, Research Design Service for Yorkshire and the Humber

Patient and public involvement in translative healthcare research
Clive Savory, Senior Lecturer in Technology Management, The Open University

   
   
  Session 4f - Impact
Papers
 

Folk.us and complexity theory: Is it possible to assess impact of involvement?
Rachel Purtell, Director, Folk.us, Peninsula College of Medicine and Dentistry

A conceptual model for evaluating the impact of public involvement in health and social research
Lisa Robinson, Physiotherapist, Falls and Syncope Service and NIHR Biomedical Research Centre in Ageing, Newcastle upon Tyne Hospitals NHS Foundation Trust

   
   
  Session 4g - Innovation in Research Commissioning
Papers
 

Using a focus group to inform research management decisions
Alison Ford, Public and Patient Involvement Manager, NIHR Research Evaluation, Trials and Studies Coordinating Centre

Using a focus group to inform research management decisions
Karla Duarte, Senior Programme Manager, NIHR Policy Research Programme
Farheen Shafiq, Programme Manager, NIHR Policy Research Programme

   
   
  Session 4h - Inclusion
Workshop
  Crash, collide and bang? Using a community of practice approach to engage service users and develop resilience research and practice
Kim Aumann, Director, Amaze Research and Training
Helen Arnold-Jenkins, Service User and Parent Trainer
   
   
  Session 4i - Practice
Workshop
  Speaking a language everyone can understand: Developing a culture of patient and public involvement in clinical research
Martin Lodemore, Patient and Public Liaison Officer, NIHR Diabetes Research Network